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Cystic fibrosis foundation since 1955 the cystic fibrosis foundation has been the driving force behind the pursuit of a cure.
Cystic fibrosis resources for parents. We offer free balanced information on all aspects of life with cf in our information resources and on our website. It does not cause intellectual disability or change a person s appearance. Resources for you and your patients with cystic fibrosis cf the role of cftr mutations in causing cystic fibrosis cf reviews cftr mutations their varying effects on cftr protein activity and the importance of genotype for clinicians patients and caregivers. It often causes problems with digestion and breathing.
The cystic fibrosis foundation supports the development of a number of helpful tools and resources to assist the research community in accelerating the progress toward new scientific knowledge of and new therapies for cystic fibrosis. Along with the medical advice you receive from your cf team our information can help you make informed decisions about your lifestyle treatment and care however you re affected by cystic fibrosis. The following books are available for checkout at our family resource center or through online booksellers. Thanks to the dedication and financial backing of our supporters patients families and friends clinicians researchers volunteers individual donors corporations and staff we are making a difference.
There is no cure for cf but it can be treated. This series includes perspectives from both cf care team members and cf parents and covers topics including diagnosis nutrition airway clearance. General cystic fibrosis resources books. The symptoms of cf can vary in.
In addition to comprehensive care and medical support the cystic fibrosis foundation offers the pathways to lifelong health video series for parents of babies recently diagnosed with cf. This parent led group gives parents and grandparents of children with cf in the seattle area a way to connect with each other. Cystic fibrosis cf is a lifelong illness that can affect all of the organs of the body. Families that do not qualify for medicaid may be eligible for this program.
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